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| Has my ADR collapsed | |
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| Tweet Topic Started: 28 May 2016, 08:39 AM (328 Views) | |
| Alastair | 28 May 2016, 08:39 AM Post #1 |
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Alastair
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Hi folks, I'm getting a lot of pain in my spine. I did have my ADR 14 years ago and am just waiting to get an x-ray to have a look and see if it is still as it should be, or if the plastic disc has collapsed. Best, Alastair
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| akh47 | 29 May 2016, 11:37 AM Post #2 |
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Alastair, I am sorry that you are now having more problems with your back. I haven't been on this site for a while, as I am back to living a full and healthy life post my ADR surgery in 2003. However, I do still worry about the Charite disc and it's longevity from time to time. This is why I have returned to this forum to see if anyone has had any complications since their original surgery. Your post has worried me as I always deemed yours as a "success" from all the other posts you wrote. It greatly concerns me that after all this time, they can still go wrong. I had my surgery for the L5/S1 disc, which I know is the one level which is inherently risky to take the disc out if it is needed to be removed, due to the scarring around the area (this is something that I truly wish I understood at the time when making my decision). I now have a lovely wife and a beautiful little boy and the thought of this thing failing inside me scares the hell out of me. I feel like I would rather have a fusion while things are good, to try and secure any chance of the ADR going wrong later in life, but I wouldn't think there would be any surgeon in the country who would operate when there is nothing wrong. Problem is, when the ADR's fail, it's pretty serious stuff. I do feel that I was lucky with the surgeon I had my surgery with, as he is clearly a very, very skilled gentleman.....I wish I had the same confidence in the ADR which is now in my back. When are you having your X-ray? Is this going to be done on NHS? Are you pretty much certain that it's the disc at this stage? All the best and take care, Andy |
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| Alastair | 30 May 2016, 08:29 AM Post #3 |
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Alastair
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Hi Andy, I'm doing everything privately and hoping to get my x-ray done on Thursday. I've got another spine surgery pending because I'm bent over further up. I had pneumonia earlier in the year and am waiting for the NHS to do a CT scan, having recovered as they can't see my right lung. I've had my ADR in for 14 years, which is longer than I hoped for. I'll keep this thread updated as to what is going on. Best, Alastair :rolleyes: |
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| ajj1001 | 31 May 2016, 04:42 AM Post #4 |
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One of mine started to go wrong after 4 years, the fusion around it has stopped anything further collapsing and also fused over the higher one that still was ok to prevent any further problems. |
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Std Meds Gabapentin, MR Tramadol, Paracetemol, Laxatives 2011 Sept PLIF L4 - S1 2010 May Discogram L2/L3 & L3/L4 both looking ok. 2009 May PLG Fusion L5/S1 Charite in situ April Dismissed 2008 Caudal Epidural failed to work 2007 Deterioration L5/S1 Facet arthritis, Loss of disc height. 2004 Returned to Work 2002 Aug - physio March 2 level ADR Charite L4/5, L5/S1 2000 Broadbased disc prolapses L4/5, L5/S1 | |
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| Alastair | 2 Jun 2016, 08:57 PM Post #5 |
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Alastair
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Went to Spire Hospital and had X rays for ADR - - - -its fine
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| akh47 | 2 Jun 2016, 09:32 PM Post #6 |
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Alastair, in many ways, it's very good news that the disc is looking good, as this will hopefully mean no revision. However, I take it you are still in pain, which is unfortunate. Did the X-Ray show up anything else? I know my facet joints were in a pretty bad way after the surgery and needed some injections to relieve the pain. From a lot of papers that I've read over the years since, I understand that it's often the facet joints that can bear the brunt of the imperfect mechanics of ADR's. That said, when I had my injections, my facets improved no-end. Were there any signs of spontaneous fusion of the facets? Another report that I read showed a 60% self fusing facet joints at a mean follow up of 10 years from the initial surgery. I'm really interested in this aspect as I believe this may remove the need for any ADR revision surgery later in life. I'm only 40, so probably only have another 18 years left in this one in my back at best. I hope you back issues resolve soon. Please keep us updated. Regards, Andy Ps Alison, I hope that things are working out for you. We've chatted in the past and I'm glad that things are not deteriorating any further. |
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| Alastair | 3 Jun 2016, 08:23 AM Post #7 |
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Alastair
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Hi Alison, it's now facet joint problems for which there is a solution and a very expensive surgery, which is only done privately in Leeds. I'm still waiting the NHS to get back to me for the CT scan following my pneumonia earlier in the year. Best, Alastair
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| spineally challenged | 3 Jun 2016, 01:45 PM Post #8 |
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Hi Alastair Great news! Really pleased to hear that the ADR is okay. Hope you don't mind me asking but what is the suggested expensive surgery that will provide the solution for your facet pain. Fingers crossed that the CT scan for your pneumonia gives you the all clear.. All the best Tim |
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1988; 4 level L2/3 - L5/S1 laminectomy / decompression 2003; ADR Zeegers - 'split level' L5/S1, L3/4 Charite 2007; discogram, remaining L4/5 level - dye uncontained/leaked - grossly degenerate disc but did not reproduce discogenic pain. Despite -ve discogram still considered candidate for 4/5 fusion. 2007-present; restricted lifestyle. 75-90% lying down during day. Still considering options.. | |
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| Alastair | 4 Jun 2016, 08:40 AM Post #9 |
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Alastair
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The surgery suggested is to put a wedge in at about L7, thus straightening up my profile and hence taking the weight off my facet joints and straightening me up because I'm very round shouldered at the moment. Expensive surgery. Don't know if it's done anywhere else but cost is £20,000. Certainly don't think it's done on the NHS. No sign of spontaneous fusing of the facet joints Best, Alastair
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| spineally challenged | 4 Jun 2016, 01:44 PM Post #10 |
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Hi Alastair Good news that there is no sign of spontaneous fusion.. I've not heard of that surgery but really hope it helps to ease your facet pain. Who is your surgeon? I must admit to being a bit confused by your reference to L7. I'm only familiar with lumbar levels 1 through 5.. did you mean T7? All the best Tim |
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1988; 4 level L2/3 - L5/S1 laminectomy / decompression 2003; ADR Zeegers - 'split level' L5/S1, L3/4 Charite 2007; discogram, remaining L4/5 level - dye uncontained/leaked - grossly degenerate disc but did not reproduce discogenic pain. Despite -ve discogram still considered candidate for 4/5 fusion. 2007-present; restricted lifestyle. 75-90% lying down during day. Still considering options.. | |
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| Alastair | 5 Jun 2016, 09:18 AM Post #11 |
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Alastair
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Hi Tim, it's further up. I'm not sure if it is L7, but it's further up and will straight up my spine, my surgeon is Jake Timothy. My big problem at the moment is coming through depression and I put a lot of weight on, so I got a body mass index of 35, which I got to get off before he can do. The surgery. Meanwhile, I'm just coping as best I can. I've got to have the outcome of the CT scan on my lungs, which hasn't happened yet. That's on the NHS Best, Alastair :rolleyes: |
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| spineally challenged | 6 Jun 2016, 04:08 PM Post #12 |
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Hi Alastair Really sorry to hear about your depression and good luck with getting your BMI down. Has Mr Timothy done this procedure before and if so is the success rate good? Wishing you all the best Tim |
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1988; 4 level L2/3 - L5/S1 laminectomy / decompression 2003; ADR Zeegers - 'split level' L5/S1, L3/4 Charite 2007; discogram, remaining L4/5 level - dye uncontained/leaked - grossly degenerate disc but did not reproduce discogenic pain. Despite -ve discogram still considered candidate for 4/5 fusion. 2007-present; restricted lifestyle. 75-90% lying down during day. Still considering options.. | |
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| Alastair | 6 Jun 2016, 05:43 PM Post #13 |
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Alastair
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Hi Tim, Yes he has done about 50 and rave reviews from his patients at least that's all the letters that I saw, but obviously you can pick the good ones from a bundle. He has come away from the Spire Hospital entirely, but some reason which I don't know. And he's not doing NHS work at all, he's doing a lot of work and most of his work at the Nuffield hospital in Leeds, which has just had a brand-new makeover of spine unit. I Have way go's yet. I've got to have a CT scan, because they can't see my right lung. On x-ray and this came out when I had pneumonia coughing up blood and pretty hairy. The weight problem is also difficult as it's hard to exercise when you're overweight, as you know. I hope you're making good progress in getting where you want to be best, Alastair ![]() PS remember I'm 80 this year and all the letters I saw were from people in their 50s and 60s. It's a minimal invasive keyhole surgery |
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Founder of this board 24th February 2007 Slow and Steady Wins This Race Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich 8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease Your Best Asset Is Your Health I live in West Yorkshire aged 81 now Knowledge is power | |
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| Waf | 10 Jun 2016, 07:46 AM Post #14 |
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Alastair really sorry to read about your problems with you're back. Hopefully you won't have to wait too much longer for your CT Scan. I have had recently had a spinal fusion following removal of the facets at L4 & L5. I also had a dynamic stabilisation at L3, to protect that disc. Is this something that you can have done higher up your spine? Good luck and hopefully you won't have to suffer too long. |
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Nov 16 C4/5, C5/6, C6/7 ADR. Mr S @ Spire Jun 16 SI Joint Fusion. Mr S, Spire Cheshire Jan 16 hybrid fusion and stabilisation L3-S1. Mr S, Spire Cheshire '15 - another positive discogram. '11 - Anterior ADR L4/5 and L5/S1 Mr Golash Positive Discogram Lots of injections Microdiscectomy | |
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| spineally challenged | 10 Jun 2016, 12:07 PM Post #15 |
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Hi Waf If I understand correctly you have had a revision fusion of your existing ADR levels (L4/5 and L5/S1) combined with dynamic stabilisation to protect the L3/4 level? I also note you appear to have just had an SI joint fusion. Wow you’ve definitely been in the wars! I hope you are recovering well from your most recent SI surgery. I would be particularly interested to hear how your revision fusion was performed - did Mr Shackleford leave the existing ADR in place and fuse over the top or did he remove the ADR’s and perform an inter body fusion? How was your recovery from this procedure and most importantly how are you now? I assume some issues remained hence the recent SI fusion.. I have considered revision surgery at my L5/S1 and possibly my L3/4 ADR levels but have struggled to find stories from people who have had successful revisions particularly when the ADR has been left in place. I feel reluctant to take the risk of having the ADR removed.. Wishing you well Tim |
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1988; 4 level L2/3 - L5/S1 laminectomy / decompression 2003; ADR Zeegers - 'split level' L5/S1, L3/4 Charite 2007; discogram, remaining L4/5 level - dye uncontained/leaked - grossly degenerate disc but did not reproduce discogenic pain. Despite -ve discogram still considered candidate for 4/5 fusion. 2007-present; restricted lifestyle. 75-90% lying down during day. Still considering options.. | |
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