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Looking for Advice
Topic Started: 3 Nov 2014, 08:30 AM (325 Views)
patriotspyke
Member Avatar
Full Member
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Hi, not poste for a long time but as you can see in my signature I have had C5/6 ADR and an L5 S1 fusion. Over the last year or so I have started to get pain in almost every joint in my body, my hips, ankles and shoulders are the worst along with my hands and feet. At times my knuckles and ankle have swollen up, the pain usually decreases throughout the day but is a lot worse in cold weather. I also get a lot of cramp. Now I have had an XRAY on my hips wich showed nothing, I have had blood tests for arthritis which again showed nothing. They have referred me to physio which I think is barking up the wrong tree. I am due to see my GP this Friday and will be really pushing him to investigate other things, I am 100% certain they are missing something. I get muscle twitches, sleep is all over the place with falling asleep watching TV but also waking up wide awake at 3/4am. SO any ideas what this could be? Gout, fibromyalgia?
ADR at C5/6 & plif l5 s1

April 2012 - l5 s1 PLIF (Spire Bristol)
Jan 2012 - Facet & Nerve root blocks L5/S1 - L4/5
Nov 2011 - Facet Injections L5/S1
Sep 2011 - Nerve root block L5/S1
Jan 2011 - Discogram L5/S1
14/10/10 - Nerve Root Blocks L5/S1
15/05/10 - ADR C5/6
02/01/10 - Nerve root blocks C5/6
08/12/09 - MRI shows C5/6 & possibly C7 herniated
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curlyshirl56
Advanced Member
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Hi Patriotspyke,

I'm sorry you are having such a rough time, just to say I hope your GP is hearing you on Friday and starts to investigate more fully.

Thinking of you,

Really hoping it is something easily resolved.

Best wishes,

Shirley
2014 Mini micro discectomy L3/4 and L4/5 prolapse
Ongoing Pain Management
Plaster body cast for 12 weeks post surgery, readmission for rehab
Thoroscapular Fusion at RNOH 12/4/12 to stabilise shoulder.
Loss of muscle use re Brachial Neuritis- shoulder dropped, winged scapula.
Developed Brachial Neuritis immediately post op
L5/S1 Spinal Kinetics M6 Implant, Mr Gavin Marsh, Croydon
RTA Severe whiplash Sep 2009
L4/5 IDET 2005
C5/6 Fusion + Titanium cage 2002
C4/5 Fusion 1987
RTA aged 18
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Alastair
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Alastair
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I think your physiotherapist is the answer
Best,
Alastair :D
Founder of this board 24th February 2007
Slow and Steady Wins This Race
Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded

ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich
8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease
Your Best Asset Is Your Health
I live in West Yorkshire aged 81 now

Knowledge is power
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ajj1001
Advanced Member
[ *  *  *  *  * ]
I would guess at it being another condition having developed, don't give up until you have had all appropriate investigations.
Std Meds Gabapentin, MR Tramadol, Paracetemol, Laxatives
2011 Sept PLIF L4 - S1
2010 May Discogram L2/L3 & L3/L4 both looking ok.
2009 May PLG Fusion L5/S1 Charite in situ
April Dismissed
2008 Caudal Epidural failed to work
2007 Deterioration L5/S1 Facet arthritis, Loss of disc height.
2004 Returned to Work
2002 Aug - physio
March 2 level ADR Charite L4/5, L5/S1
2000 Broadbased disc prolapses L4/5, L5/S1
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patriotspyke
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Full Member
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We I will be pushing on Friday to get a referral to Ruma, I have looked a lot at Fibromyalgia and that is not it as a lot of my pain is in my joints, although I tick 90 of the symptoms. I do however tick 99% of the symptoms of ankylosing spondylitis. I went out last night with the family to watch some fireworks and with the cold was totally crippled after 20 mins, I have some good days and others are awful with pain in most of my joints, my hands and ankles have swollen up at times but the pain is sharp stabbing along with muscle cramps and tightening. Just getting really tired of my GP asking about my mood and if I enjoy life whilst fobbing me off and not getting me in front of the right consultant.
ADR at C5/6 & plif l5 s1

April 2012 - l5 s1 PLIF (Spire Bristol)
Jan 2012 - Facet & Nerve root blocks L5/S1 - L4/5
Nov 2011 - Facet Injections L5/S1
Sep 2011 - Nerve root block L5/S1
Jan 2011 - Discogram L5/S1
14/10/10 - Nerve Root Blocks L5/S1
15/05/10 - ADR C5/6
02/01/10 - Nerve root blocks C5/6
08/12/09 - MRI shows C5/6 & possibly C7 herniated
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patriotspyke
Member Avatar
Full Member
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Got a referral to a hip specialist and also rheumatology... my bloods came back with high inflammation on the plasma test 2.3 I think. Finding it hard to walk as my right foot and heel are in a lot of pain along with the left ankle. Hands are sore and the right hand knuckles have swollen up with some redness on the hand. I hate cold weather!
ADR at C5/6 & plif l5 s1

April 2012 - l5 s1 PLIF (Spire Bristol)
Jan 2012 - Facet & Nerve root blocks L5/S1 - L4/5
Nov 2011 - Facet Injections L5/S1
Sep 2011 - Nerve root block L5/S1
Jan 2011 - Discogram L5/S1
14/10/10 - Nerve Root Blocks L5/S1
15/05/10 - ADR C5/6
02/01/10 - Nerve root blocks C5/6
08/12/09 - MRI shows C5/6 & possibly C7 herniated
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patriotspyke
Member Avatar
Full Member
[ *  *  * ]
Saw the hip specialist and she said Rheumatology is the only way forward, since Nov my hands, feet, ankles, hips etc have got worse and there is visible swelling at times in the finger joints and ankles along with redness this cold weather is killing me....
ADR at C5/6 & plif l5 s1

April 2012 - l5 s1 PLIF (Spire Bristol)
Jan 2012 - Facet & Nerve root blocks L5/S1 - L4/5
Nov 2011 - Facet Injections L5/S1
Sep 2011 - Nerve root block L5/S1
Jan 2011 - Discogram L5/S1
14/10/10 - Nerve Root Blocks L5/S1
15/05/10 - ADR C5/6
02/01/10 - Nerve root blocks C5/6
08/12/09 - MRI shows C5/6 & possibly C7 herniated
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