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Cannot sleep lying down
Topic Started: 10 Jul 2013, 08:25 AM (280 Views)
Alastair
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Alastair
[ *  *  *  *  * ]
I Cannot sleep lying down. I had pulse RF ablations just over a month ago, picked up a chest infection in the hospital, ended up on antibiotics because the coughing was irritating where the surgery was.

I'm on Bu trans patches at the moment, was hoping to come off them this week but things have gone really badly and it's at night time. I can't lie down flat to sleep it's too painful where the surgery was done. I've done a couple of quick upgrades from 5 µg up to 15 µg. The maximum that I've been on is 20 µg

I'm having to sleep sitting up if I'm getting out of this problem and jiggling pillows about to get into that situation. Has anybody else got this only being able to sleep sitting up?
Founder of this board 24th February 2007
Slow and Steady Wins This Race
Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded

ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich
8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease
Your Best Asset Is Your Health
I live in West Yorkshire aged 81 now

Knowledge is power
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naintaid
Advanced Member
[ *  *  *  *  * ]
so sorry to hear this
cant offer any advice im afraid just get better wishes
discetomy feb 2005
discetomy june 2005
mri 3 of
cat scan
facet joint injections .aug 2007
adr active l disc 2 level .l4l5 and l5 s1 .sept 2010.
2 blood transfusion after adr surgery
feeling more positive.

4 years post op and everything is fine,really pleased with outcome.
go back every 2 years for check up and x ray.
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ajj1001
Advanced Member
[ *  *  *  *  * ]
After my fusions i have had to sleep reclined rather than lying down, I have then gradually reduced the angle on either my bed or electric chair to get to a lying position eventually. This took months, sleeping took a while to get easier, the bed & chair were a complete godsend.

Sorry you are having this problem and hope things ease soon.
Std Meds Gabapentin, MR Tramadol, Paracetemol, Laxatives
2011 Sept PLIF L4 - S1
2010 May Discogram L2/L3 & L3/L4 both looking ok.
2009 May PLG Fusion L5/S1 Charite in situ
April Dismissed
2008 Caudal Epidural failed to work
2007 Deterioration L5/S1 Facet arthritis, Loss of disc height.
2004 Returned to Work
2002 Aug - physio
March 2 level ADR Charite L4/5, L5/S1
2000 Broadbased disc prolapses L4/5, L5/S1
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Alastair
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Alastair
[ *  *  *  *  * ]
Thanks for that Alison, I'm going to try and gradually decrease the angle but it's very good to know that you have done this and succeeded
best wishes,
Alastair :D
Founder of this board 24th February 2007
Slow and Steady Wins This Race
Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded

ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich
8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease
Your Best Asset Is Your Health
I live in West Yorkshire aged 81 now

Knowledge is power
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TootyFrooty
Newbie
[ * ]
Hi Alastair,

I can sympathise with what you are going through. For months now I dread going to bed. I used to be able to get some sleep without excrutiating pain by lying on my right hand side with my knees bent and a pillow between my knees. But not anymore. I go to bed in pain and wake up in excrutiating pain all through the night. When it is really bad and the excrutiating pain keeps going all through the day, I have to sleep in my recliner chair. I don't get a "proper" sleep in my recliner chair, I seem to only dose.

Having Fibromyalgia, not getting any "proper" sleep has quite a severe effect on my life. I nodd off anywhere at any time.

I have opted for my facet joint spacer operation, which I have booked for 2 weeks time. The pain, especially at night, is so bad that I can't go on anymore without trying this operation.

Do you have an adjustable bed? I bought one hoping that being able to change the head and foot height of the bed might help my pain but it didn't. The pillow between my legs helped for a small time, but it seems it is now nothing helps.
Back Pain for 20 Years
DDD Level L4/L5 Diagnosed 2010, Mr Labram, Neurosurgeon,
2010 L4/L5 Discectomy - didn't help, now have L5 nerve
damage
2010 Diagnosed with Fibromyalgia, Dr Eastmond,
Rheumatologist,
2011 Steroid Epidural - didn't help, Prof Chambers, Pain
Management,
2012 Referred to Mr Craig, Orthopaedic Surgeon,
2012 Diagnosed with Facet Joint Arthritis
2012 Facet Joint Injections - didn't work
2013 July - Agreed to try "SMS" Operation
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Alastair
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Alastair
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Hi,
I have not got an adjustable bed, I've just done things with pillows which seems to be helpful especially a big V pillow
best,
Alastair :D
Founder of this board 24th February 2007
Slow and Steady Wins This Race
Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded

ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich
8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease
Your Best Asset Is Your Health
I live in West Yorkshire aged 81 now

Knowledge is power
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curlyshirl56
Advanced Member
[ *  *  *  *  * ]
Alastair I'm so very sorry you are having such a rotten time - and yet you still offer great support to so many people. You really are a Star and very much appreciated :D

I still have to sleep semi laying due to thoracic pain and no possibility of sleeping on my right side due to the thoroscapular fusion.
I have managed to gradually recline further tho and the mountain of pillows does seem to have reduced ;)

Wishing you well Alastair, you truly deserve some respite from this horrid pain.

take good care,

Shirley
2014 Mini micro discectomy L3/4 and L4/5 prolapse
Ongoing Pain Management
Plaster body cast for 12 weeks post surgery, readmission for rehab
Thoroscapular Fusion at RNOH 12/4/12 to stabilise shoulder.
Loss of muscle use re Brachial Neuritis- shoulder dropped, winged scapula.
Developed Brachial Neuritis immediately post op
L5/S1 Spinal Kinetics M6 Implant, Mr Gavin Marsh, Croydon
RTA Severe whiplash Sep 2009
L4/5 IDET 2005
C5/6 Fusion + Titanium cage 2002
C4/5 Fusion 1987
RTA aged 18
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Alastair
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Alastair
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Thanks Shirley,
I'm just trying to go now onto 3 pillows and sleep at an angle and that seems to be reasonably successful but nothing fantastic at the moment. I got down to 5 µg of Bu trans, but had to go back up and I'm back upon 15 µg, having problems with the doctor not putting this on my repeat prescription because it's a CLASSIFIED drug,
emailed my specialist who hopefully will put a boot up the backside of the doctor
best,
Alastair :D
Founder of this board 24th February 2007
Slow and Steady Wins This Race
Over 23 Years experience and research into spine surgery and over 2500 surgeries discussed and recorded

ADR L5/S1 Surgery with Dr Zeegers 26th July 2002 in Munich
8 facet joint ablations 28 – 8 – 12 with Dr Baranidharan and Jake Timothy in Leeds Diagnosed Forestiers disease
Your Best Asset Is Your Health
I live in West Yorkshire aged 81 now

Knowledge is power
Offline Profile Quote Post Goto Top
 
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